2023 Melbourne Meeting

The 2023 Melbourne Orthostatic Tremor meeting was held at the The Victoria Hotel in Melbourne on Tue Sep 5 and Wed Sep 6.

46 people attended, 28 of whom identified as OT patients.

The agenda focused on group discussions and sharing of experiences across a range of topics with mutual interest for those living with OT complemented by video presentations from Dr. Karen D. Sullivan and Prof. Diego R. Torres-Russotto.

Class Photo

Thanks to Dion for the photo.

Photo Gallery

Some more pictures from the event may be found here.

Presentations and Session Summaries

  • Welcome
    Nicola Jones (founder of the Facebook Primary Orthostatic Tremor Group) was unable to attend the meeting, but she sent a welcome message that was read by Colleen.
  • Befriending OT – An Acceptance and Commitment Approach to Living a Life of Quality and Values
    Dr Karen Sullivan, PhD, ABPP, Neuropsychologist, I Care for Your Brain
    Supplementary information related to Karen’s presentation.
  • OT Update
    Prof. Diego R. Torres-Russotto, MD, FAAN, Chair of Neurology, Chief of Movement Disorders, Miami Neuroscience Institute. Baptist Health South Florida

Note: the remainder of this page is under construction and we’ll add content as quickly as we’re able to … Ken and Colleen

  • Psychology Session
    • Stress and coping strategies
    • Apathy, anxiety and depression
    • Positive thinking and meditation
  • Medications and Treatments Session
    • Prescribed drugs
    • Herbal remedies
    • LDN / CBD oil
    • Surgery / ultrasound
    • Oxygen therapy
    • Vitamins
  • Physical Impact and Exercise Session
    • Fatigue, lack of sleep, restless leg syndrome (RLS), pain
    • Balance, walking and freezing
    • Physiotherapy, exercise
  • Mobility Aids Session
    • Walkers, scooters, stools, canes, folding seats
    • For around the home, garden, outdoors, travel
  • Food and Nutrition Session
    • Healthy diet, Keto, paleo, gluten-free, low-carb
    • Weight gain and loss
  • Those Around You Session
    • Family, friends and carers
    • Doctors, health professionals, work colleagues
    • Support groups and social activities
    • Government support: NDIS and MyAgedCare