Primary Orthostatic Tremor Australia

For, and by, those dealing with POT

2023 Melbourne Meeting

The 2023 Melbourne Orthostatic Tremor meeting was held at the The Victoria Hotel in Melbourne on Tue Sep 5 and Wed Sep 6.

46 people attended, 28 of whom identified as OT patients.

The agenda focused on group discussions and sharing of experiences across a range of topics with mutual interest for those living with OT complemented by video presentations from Dr. Karen D. Sullivan and Prof. Diego R. Torres-Russotto.

Class Photo

Thanks to Dion for the photo.

Photo Gallery

Some more pictures from the event may be found here.

Presentations and Session Summaries

  • Welcome
    Nicola Jones (founder of the Facebook Primary Orthostatic Tremor Group) was unable to attend the meeting, but she sent a welcome message that was read by Colleen.
  • Befriending OT – An Acceptance and Commitment Approach to Living a Life of Quality and Values
    Dr Karen Sullivan, PhD, ABPP, Neuropsychologist, I Care for Your Brain
    Video
    Supplementary information related to Karen’s presentation.
  • OT Update
    Prof. Diego R. Torres-Russotto, MD, FAAN, Chair of Neurology, Chief of Movement Disorders, Miami Neuroscience Institute. Baptist Health South Florida
    Video

Note: the remainder of this page is under construction and we’ll add content as quickly as we’re able to … Ken and Colleen

  • Psychology Session
    • Stress and coping strategies
    • Apathy, anxiety and depression
    • Positive thinking and meditation
  • Medications and Treatments Session
    • Prescribed drugs
    • Herbal remedies
    • LDN / CBD oil
    • Surgery / ultrasound
    • Oxygen therapy
    • Vitamins
  • Physical Impact and Exercise Session
    • Fatigue, lack of sleep, restless leg syndrome (RLS), pain
    • Balance, walking and freezing
    • Physiotherapy, exercise
  • Mobility Aids Session
    • Walkers, scooters, stools, canes, folding seats
    • For around the home, garden, outdoors, travel
  • Food and Nutrition Session
    • Healthy diet, Keto, paleo, gluten-free, low-carb
    • Weight gain and loss
  • Those Around You Session
    • Family, friends and carers
    • Doctors, health professionals, work colleagues
    • Support groups and social activities
    • Government support: NDIS and MyAgedCare